Privacy Policy

This privacy policy (“Privacy Policy“) aims to give you information on how IBD Patient Support Association, (“We” or “IBD“) collects and processes information about you through your use of (the “Site“).

We may collect and process information relating to you through your use of the Site. We shall process any information We collect in accordance with applicable laws and the provisions of this Privacy Policy.

The information referred to above includes personal data, which means information that can be used to identify a natural person, including but not limited to your name, address, telephone number and e-mail address, and payment details including credit/debit card details. Some of the information We may collect about you may include sensitive personal data relating to health.

This information referred to above may be gathered when you create an account on our Site; when you subscribe to our services; when feedback or e-mails are sent to IBD; when you choose to share information with other users of the Site; or when you register or donate via the Site. We need this information so that We can provide you with access to the Site, make available to you the information that is held on the Site, and provide you with our services.

If you choose not to provide us with this information, the consequences are that you may be prevented from accessing all or portions of the Site, and We may be unable to provide you with our services.

We may also automatically collect certain anonymous data through your use of and interaction with the Site. This information does not personally identify users, either by itself or in combination with other information, and is gathered to improve the performance of the website. The anonymous data collected by your use of the Site may include information such as the type of browser you are using, and the length of the visit to the Site.

USE AND DISCLOSURE OF INFORMATION. Except as otherwise stated below, We do not share, sell, trade or rent your personal data collected on the Site to others. The information collected by IBD through the Site is used to provide you with access to the Site, to administer and operate the Site, to keep you informed about our latest updates and activities, to provide you with any services that you have requested, to process payments for goods and services or donations, to comply with any requirements of applicable laws, and for statistical purposes for improving the Site.

Additionally, if you provide IBD with content for publishing on the Site or feedback, including any sensitive personal data relating to your health, We may publish your user name or other identifying data with your permission.

We may use “aggregated data” which will not directly or indirectly reveal your identity, such as statistical or demographic data, to enhance the operation of the Site, or analyse interest in the areas of the Site.

We may share your personal data with the parties set out below for the purposes set out in this Privacy Policy:

  • Third party service providers where they support or provide services to IBD;
  • Professional advisers, including lawyers, bankers, auditors and insurers who provide consultancy, banking, legal, insurance and accounting services;
  • Any revenue service or tax authority, if obligated to do so under applicable regulations;
  • Other users of the Site where We have received your permission to publish content that identifies you; and
  • Any other person or organisation after a restructure, sale or acquisition.

We may also disclose personal data in order to respond to a subpoena, court order or other requests from a competent judicial or health authority for public health purposes, including (but not limited to) inspections.

We may also provide such personal data in response to law enforcement agencies request or as otherwise required by law. We require all third parties to treat your personal data in accordance with applicable laws.


If any information which you provide to IBD relates to any third party, by providing us with such information you or they confirm that you or they have obtained any necessary permissions from such persons to the reasonable use of their information in accordance with this Privacy Policy, or are otherwise permitted to give IBD this information on their behalf.


You will receive marketing communications from us if you have requested information from us or purchased goods or services from us and you have not opted out of receiving that marketing.

We may use your identity, contact, technical, usage and profile data to form a view on what We think you may want or need, or what may be of interest to you. This is how We decide which products, services and offers may be relevant for you (we call this marketing).

We will get your express opt-in consent before We share your personal data with any third party for marketing purposes.

You can ask us or third parties to stop sending you marketing messages at any time by contacting us at any time at

COOKIES. Cookies are small bits of data cached in a user’s browser. The Site utilizes cookies to determine whether or not you have visited the home page in the past, and these cookies collect anonymous data about your use of the Site, including information such as the type of browser you are using, and the length of your visit to the Site. However, no other user information is gathered.

You can set your browser to refuse all or some browser cookies, or to alert you when websites set or access cookies. If you disable or refuse cookies, please note that some parts of the Site may become inaccessible or not function properly.

SECURITY. We take appropriate steps to ensure data privacy and security including through various hardware and software methodologies. However, We cannot guarantee the security of any information that is disclosed online.

DATA RETENTION. We will only keep the information We collect about you on our system or with our third parties for as long as reasonably necessary for the purposes set out in this Privacy Policy, or as reasonably necessary to comply with any legal, regulatory, tax, accounting or reporting requirements to which We are subject. We may retain your personal data for a longer period in the event of a complaint or if We reasonably believe there is a prospect of litigation in respect of our relationship with you. This will involve us regularly reviewing our files to check that information is accurate and up-to-date and still required.

OTHER WEBSITES. Please be aware that the Site may contain links to other sites on the internet that are owned and operated by third parties. The information practices of those websites linked to the Site are not covered by this Privacy Policy. We do not control these third party sites and We are not responsible for the privacy policies of websites to which the Site links. If you provide any information to such third parties, different rules regarding the collection and use of your personal information may apply. We strongly suggest you review such third party’s privacy policies before providing any data to them. These other sites may send their own cookies or clear GIFs to users, collect data or solicit personally identifiable information. We cannot control this collection of information. You should contact these entities directly if you have any questions about their use of the information that they collect.

MINORS. We do not knowingly collect personal information from minors under the age of 18. Minors are not permitted to use the Site or its services, and We request that minors under the age of 18 not submit any personal information to the Site. Since information regarding minors under the age of 18 is not collected, We do not knowingly distribute personal information regarding minors under the age of 18.

CORRECTIONS AND UPDATES. If you wish to modify or update any information We have received, please contact

MODIFICATIONS OF THE PRIVACY POLICY. The terms of this Privacy Policy may be changed or updated from time to time to meet the requirements and standards under the applicable laws and practice. Therefore, you are encouraged to frequently visit these sections in order to be updated about the changes on the Site. Such Modifications will be effective on the day they are posted.